This summer I participate in and organised Uppsala Health summit together with lots of other people. For me the theme of the Health summit was indeed top priority as I have many friends and family with cancer. I have seen how cancer treatment work at close hand through my husband who was diagnosed and treated with cancer a few years ago. Since I have done studies on patients and health care professionals, this experience gave me another depth in my understanding of cancer. It is difficult to imagine living with the uncertainty of treating cancer, and also the change of adapting your whole life to cancer treatments. Luckily my husband has had few side effects from the cancer, and everything has gone very well so far.
As a part of organizing the Uppsala Health Summit we wrote a debate article that was published in Dagens Samhälle, found here. Some of the things we say in this debate article are:
- We need to work with the infrastructure so that IT systems can share information and data. I have seen this at close hand, and the computer systems are sometimes like black holes in health care. The system at the different departments did not talk to each other, so there was little coordination between radiation and chemotherapeutic treatment for example.
- Physical treatment needs to be an integrated part of all cancer treatment, and also a part of what is recommended as a part of life for cancer survivors. No one mentioned that physical activity was so crucual during my husband’s treatment and we didn’t understand that it was that important.
- Cancer treatment needs to be more equal across the world. During the Uppsala Health Summit it was shocking to hear the circumstances in other parts of the world, and to listen to the presentations made about the understanding of cancer. This is an area that I would like to get involved more in and to try to help!
I hope that the Uppsala Health Summit has contributed to some steps being taken towards better cancer care.