Category Archives: patient empowerment

New Study : Managers and the Implementation of Medical Records Online

I am about to start a new study on the implementation of medical records online in different counties and regions in Sweden. This study is supported by INERA which is the coordinating organisation for you health services nationally in Sweden. It is also partly funded by my work in the NordWIT Centre.  The study is multidisciplinary, and there will be researchers coming from gender studies, medical Informatics and human computer interaction collaborating in the analyses and writing up of the data.

Next week I will do my first interviews, and later on we will distribute a survey to all regions and counties in Sweden. This study will focus on the implementation process and what happened in different parts of the country. The study will also focus on the experiences and careers of the managers and leaders who works with this.

The launch of medical records online for patients was indeed controversial in Sweden. Many physicians and nurses were worried that patients would read and become upset and anxious. Other concerns related to the work environment in healthcare, and the increased need of support from patients who might read their medical directors and be worried. At the same time many patients appreciated the system, and today the system is used by more than 1 million people in Sweden.

Sweden consist of autonomous County council and Regions when it comes to IT and eHealth. This means that they all individually decided what to show to patients, when to show it and also what not to show. In our study we will be investigating this process and what happened.

I am so thrilled about doing a study on my own again! Lately I’ve been supporting others very much, but now it’s finally my turn to do it myself again!

I will surely blog more about this in the future 🙂

The Background to the IT in Society Class

Now we have kicked off this year’s IT in Society Class. There will be a series of blog post about this course this fall.

Some of the things that make this course very special are:

  • Region Uppsala act as a real client to the student project
  • We get a topic for the course from the client very year
  • It is a global distributed project.
  • The students come from Rose-Hulman Institute of Technology and from Uppsala University.
  • It is based on a pedagigical concept called Open Ended Group Projects

The IT in Society unit was introduced into the IT engineering degree program as a response to industry feedback collected using questionnaires and meetings prior to commencement of the degree program in 1995.  This input emphasized that scaffolding the development of teamwork and communication skills were high priority areas for our industry stakeholders.

Running this course unit has been a challenge every year since 1998, and it has been a quite inspiring challenge.   The open-ended group project idea suited this course unit well. But the (for the students, who had experienced a highly technical preparation in most of their other degree course units) unusual content (e.g. societal aspects) added complexity to setting up a productive learning environment.  Much effort over the years has been put into devising appropriate scaffolding to support the students, without compromising the underlying ideas behind the open-ended group project concept. There will be more info about this concept later on. 

There is a whole series of research publications based on this course. The most prominent one is Mats Daniel’s PhD thesis found here