This week I submitted an application for funding of a research programme related to equal communiation using ICT for foreign-born people. The programme will include three complementary research areas and addresses an urgent societal problem. The three areas are caring sciences, computer science and health economics.
The writing process was really very much fun this time. I collaborated with a full professor of Caring Science, and we had a great time even though we don’t know each other that much. The full professor of Caring Science is the Principal Investigator of the application.
In the programme we will work with the exploration of communiation needs of foreign-bron people with chronical diseases, and then continue with implementation of ICT related support to improve communication. The programme will run for six years, if funded, and will include three PhD students and two post doc positions some of which are in caring sciences and others in computer science.
When writing applications for funding, chances are quite low that you get funded. However, if you don’t submit any applications there will for sure be no money….
I really hope that we get funding for this programme and that I can get the possibility to explore this area!!
Last week I was invited to discuss Anna Haufmann’s half-time seminar in Caring Science at Uppsala University. A half-way seminar at Uppsala University has the purpose of giving feedback and input on the work done, but more importantly on the plans forward. It is not an occasion with a formal examination. PhD education is a wildling road forward, and most of all this occasion is a possibility to get some input on possible ways forward.
Anna Haufmann did an interesting and professional presentation of her work so far. This work has included one published paper, and one paper that is in progress. The published paper describes the experiences from developing of an internet based intervention for adult cancer patients that are diagnosed with depression. The intervention was planned with patients and different health care professionals. I especially liked the fact that they had included patients in the design process, and that their team was multidisciplinary! The paper that has not been submitted yet shows great potential to be a very good journal publication, or even two journal publications. It is an interview study with rather open questions to patients related to their experiences from the intervention. I will not write more about it here due to the future review process, but the paper(s) will be worth reading 😃.
Anna Haufmann also presented the planned work ahead that includes two more journal publications. They will include studies on the effects of the intervention, and statistical methods will be used.
The seminar was very nice, and the other examiners were from very different dicsiplines. This made the discussions lively and also more interesting! Anna Haufmann acted very professionally, and I am confident that her PhD thesis will be an interesting read!
I hope that Anna Haufmann felt that she got good feedback, and that she also got the energy to write up the last parts of her PhD!
Methods are truly important when you do research, and depending on your research tradition there are indeed many strong opinions about what is a good and bad method. Generalizability, validity and reliability are for some the only quality criteria possible. And if you do an interview study you need an enormous number of interviews according to some people.
Some would argue that human-computer interaction is indeed a melting pot of different opinions and perspectives on methods. Indeed, I have seen some very harsh comments on some of the methods that I have used from people with a completely other world-view. The problem when I get these comments is that I don’t really know what to write as an answer. Please take a course in qualitative research and relevant quality criteria for that kind of research is perhaps not the most politically correct rebuttal text to write.
One of my favorite stories related to methods is from my supervisor, Jan Gulliksen who was a part of a long review process where one other researcher claimed that the method was un-important:
I don’t care that the method is flawed. I like the results!
Before the Christmas holiday Christiane Grünloh presented a workshop paper that we wrote together that presents a mixed methods approach to analyzing interviews.
“Human-Computer Interaction (HCI) is a melting pot of different theories and methods. The combination of qualitative and quantitative methods in studies is still quite rare, but has become more and more common. In this paper, we present our experiences from doing a combination of quantitative and qualitative analysis to shed some light on patient accessible electronic health records. We conducted a national survey to patients to learn about their experiences of accessing their electronic health records. The questionnaire was informed by previous interviews with physicians related to effects on their work environment, and we made use of identified themes from that study as a lens to analyse survey data.”
You find the paper free for download here.
I was appointed as one of the external reviewer of Jean Hallewell Haslwanter´s PhD dissertation with the title “User-Centered Development of Sensor-based Systems for Older People”. I must say that this was indeed an interesting thesis to read and I strongly recommend it for anyone who is interested in healthcare technology and user-centered design.
Ambient Assisted Living (AAL) is a technology that has been proposed to help society with problems related to an ageing population, as it could support older people to live at home instead of moving into elderly homes. However, despite the fact that many IT projects and companies have been working with the development of this technology, and large amounts have been invested in AAL, few such technologies has reached the market. In her thesis, Jean Hallewell Haslwanter addresses the issue from a user-centered design perspective and her work aims at understanding why AAL technologies have proven so difficult to develop.
The thesis has a substantial empirical contribution as it studies the development of AAL systems. One interesting finding is that the complex and multifaceted descriptions of the users fade away as the project continues, and is replaced by stereotypes of older people. Other contributions include recommendations for practitioners working with development of AAL technology.
Jean Hallewell Haslwanter’s dissertation is a monograph, but she has 13 research papers that are previously published. Many of the papers are conference papers, of which many appear in highly ranked international conferences. There are also conference papers that have been turned into journal papers. If you are interested you can find these publications online at the link.
I was interviewed on the P4 Västmanland radio the other day. The reporter was interested in patients reading their medical records online, and the research in the DOME consortium, and asked me questions such as:
- Do patients contact health care with more questions?
- What does reserarch say about getting cancer results, or other negative results from Journalen?
You find the interview 8 min into this radio program
Vitalis is an important venue for innovators, business and reseracher in eHealth, and brings together 4,500 participants. Next Vitalis takes place 24-26 April 2018 in Gothenburg, and last week the students from the IT in Society class submitted a proposal for a presentation at the conference.
The students will present their research on how health care can improve and become more efficient using tracking technology. I would suspect that it is not as easy as tracking in the snow, as in this blog post’s photo, however.
The students are doing extensive research on the topic this semester, with interviews field studies and literature reviews and studies to industries who have used tracking systems in their organizations to become more efficient.
The students will present their work around Christmas for Region Uppsala, and let’s hope that they are accepted to the conference so that knowledge and insights from their great work has a chance to spread!
Anders Klingberg has done some interesting work related to the intention and motivation among emergency care staff to use smartphones for burn injury tele-consultation. He has been looking at burn care in South Africa and in Tanzania where these kinds of injuries are quite common, especially in young children. One of the problems that they have found is the burn diagnosis and initial treatment, and they investigate the use of smart phones for burn injury consultation.
Yesterday Anders Klingberg presented his work at Karolinska Institutet, and I was a part of a committee of three people who discussed his work with him. So far he only has one published paper, but there are more papers to come – so watch out for them 🙂
Now we have kicked off this year’s IT in Society Class. There will be a series of blog post about this course this fall.
Some of the things that make this course very special are:
- Region Uppsala act as a real client to the student project
- We get a topic for the course from the client very year
- It is a global distributed project.
- The students come from Rose-Hulman Institute of Technology and from Uppsala University.
- It is based on a pedagigical concept called Open Ended Group Projects
The IT in Society unit was introduced into the IT engineering degree program as a response to industry feedback collected using questionnaires and meetings prior to commencement of the degree program in 1995. This input emphasized that scaffolding the development of teamwork and communication skills were high priority areas for our industry stakeholders.
Running this course unit has been a challenge every year since 1998, and it has been a quite inspiring challenge. The open-ended group project idea suited this course unit well. But the (for the students, who had experienced a highly technical preparation in most of their other degree course units) unusual content (e.g. societal aspects) added complexity to setting up a productive learning environment. Much effort over the years has been put into devising appropriate scaffolding to support the students, without compromising the underlying ideas behind the open-ended group project concept. There will be more info about this concept later on.
There is a whole series of research publications based on this course. The most prominent one is Mats Daniel’s PhD thesis found here
This summer I helped in organizing a summer school in user centered design and eHealth. The summer school was organized for PhD students and junior researchers in the area, and there were many who applied to the around 35 available positions.
Organizing a summer school was really great fun, and I got to meet a lot of interesting people who do research related to my own eHealth research area. It was also very good to see that the group taking the course became such a well-functioning community of practice during the week, and I am quite sure that they will stay in touch after the summer school has ended. One of the members of the summer school will be visiting my research group for six months as a part of her PhD Education, and for us that will be a great chance to get a new colleague.
My collegue Jonas Mol has written several blog posts about the summer school and all the fantastic lectures. You find his blog posts here:
- Day 1 (Intro, action research,…)
- Day 2 (Patient accessible electronic health records,…)
- Day 3 (Game demoes and workshop,…)
- Day 4 (Soma design, sustainable development,…)
- Day 5 (Project work and lectures)
It’s been a great week in Dublin so far, despite quite cloudy days and occasional rain. The week has been full of good lectures related to the eHealth from different perspectives. The lecture hall in itself was amazing, and during one lunch break we went to visit the old library which was an amazing building (se pictures of this blog)!
There has been many great lectures this week, and I can’t write about them all. Among other things Ann Blandfords presentation of a study made by Hanna Schneider (Msc) of patients different perspcecitves on a system for communicating with health care and the four categories of roles they found in their interveiw material: 1) Controller 2) Collaborator 3) Cooperator 4) Avoider. In this study the self determination theory (Ryan & Deci) was used. I would love to read up some more on that one!
Jonas Moll from the HTO group has written several more detailed blog posts about the lectures and the content. Hop on to his blog and read about these 🙂
In a few weeks the EIT summer school will meet again in Stockholm and Uppsala. Jan Gulliksen and I have worked out a good schedule that will include a visit to the Visualisation studie at KTH and other things. The day in Uppsala will be organised in conjunction with Region Uppsala and the EPJ division, as well as the DOME consortium. There are indeed good and interesting lectures coming up!