Category Archives: DOME

Radio Interview on Medical Records Online

I was interviewed on the P4 Västmanland radio the other day. The reporter was interested in patients reading their medical records online, and the research in the DOME consortium, and asked me questions such as:

  • Do patients contact health care with more questions?
  • What does reserarch say about getting cancer results, or other negative results from Journalen?

You find the interview 8 min into this radio program

 

EIT Summer School in Dublin

It’s been a great week in Dublin so far, despite quite cloudy days and occasional rain. The week has been full of good lectures related to the eHealth from different perspectives. The lecture hall in itself was amazing, and during one lunch break we went to visit the old library which was an amazing building (se pictures of this blog)!

There has been many great lectures this week, and I can’t write about them all. Among other things Ann Blandfords presentation of a study made by Hanna Schneider (Msc) of patients different perspcecitves on a system for communicating with health care and the four categories of roles they found in their interveiw material: 1) Controller 2) Collaborator 3) Cooperator 4) Avoider. In this study the self determination theory (Ryan & Deci) was used. I would love to read up some more on that one!

Jonas Moll from the HTO group has written several more detailed blog posts about the lectures and the content. Hop on to his blog and read about these 🙂

Day 1 

Day 2 

Day 3 

 

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In a few weeks the EIT summer school will meet again in Stockholm and Uppsala. Jan Gulliksen and I have worked out a good schedule that will include a visit to the Visualisation studie at KTH and other things. The day in Uppsala will be organised in conjunction with Region Uppsala and the EPJ division, as well as the DOME consortium. There are indeed good and interesting lectures coming up!

 

DOME conference on Medical Records Online in Skövde

We had a great Dome conference in Skövde about our research on medical records online. There were 12 reserachers present during this conference from a large number of universities. The first day there were some presentations of new and upcoming studies of the effects of patients reading their medical records online.

Erebouni Arakelian who has a PhD in medicine joined a Dome meeting for the first time and presented the plan for a study on the patient group that she is working with, and that she has done studies on before. She will do 30 interviews during the coming years, and has already gotten ethical approval for her study.

Bridget Kane who does reserch in HCI and in Computer Supported Collaborative Work also joined the meeting for the first time and she did a presentation of her previous studies and what she has done in her work. She has covered a very interesting, and large area related to eHealth.

It was interesting to hear about the plans for the upcoming studies, and to discuss what areas we should look more into based on previous findings. Here are some of the upcoming  studies:

  • Interview study with cancer patients by Ereboni Arakelian as a follow up to the national survey sent out in the fall of 2016 and the interviews made around 2013.
  • Interview and survey study with health care professionals at the Oncology department about the effects on the work environment. Jonas Moll it in charge of this study and bloggs about this study here if you want to know more. (this study is a part of the Disa project)
  • Interviews with patients in primary care about their use of medical records online (as a part of Maria Hägglund and Isabella Scandurra’s project Pacess)

There were some new members of the consortium present at the conference, and some old members have moved on to other research areas. I am however really glad to see that we have created an open and well functioning community where newcomers are very welcome.

Collaboration with the Department of EMR in Region Uppsala

We have had a very good collaboration with the department of EMR in the Region Uppsala since a few years. We call this collaboration the Dive (Digital work enVIronment and Ehealth) project, and we are a group of 3-4 reserachers who participate.  This collaboration has been in the form of an action research project where researchers from our department worked togehter with people from the EMR department in designing a new IT system for surgical planning. We have also collaborated in doing some evaluations of usability aspects that has been used in the deployment of the system. We will also do follow up evaluations of usability. Now we have moved on to looking into decision support systems, and my collegues do vision seminars and will work on a design.

The department of EMR also collaborate with us around the IT in Society class  that has resulted in a report, a presentation and also visibiliy at Vitalis 2017.

The Disa project is also supported by the department of EMR, and we collaborate around this project too. This project includes around 10 reserachers who will look into the effects of digitaliczation in health care and the project will result in concepts and a eWorkenvironment framework possible to use when implementing IT in health care. The department of EMR has an excellent and very active representative on the advisory board of the project who has helped us a lot in understanding the organisation.

In these kinds of collaborations it is crucial to find a win-win situation, where both the reserachers and the organisations feels that they get energy and effect from the collaboration. In our case the collaboration in the  Dive project has given us much insight in eHealth development and in the complexities of working with IT in health care, which is crucial to be able to work in that area. And I know that the department of EMR are very pleased with the input regarding design that we have given hem. The Disa project has just started, and hopwfully that will result in a win-win too.

We are extremely happy about this colllaboration, and strongly recommend other reserach groups to try the same approach to collaboration!

Pod from MT-Talks on Medical Records Online

Before Christmas Jonas Moll and I were interviewed in a pod cast at  about our research on medical records online. The pod cast was produced by department of media technology at Södertörn högskola.

You can find the pod at the MT web page: http://www.mttalks.se/pod/

There seem to be many very interesting pods at this pod cast, and I will make sure to listen to them all in the near future!

 

Seminar on Digital Work Environment with Examples from Health Care and DOME

Last week Gerolf Nauwerck and I did a presentation about Digital Work Environment at the Swedish Ergonomic Society’s yearly meeting. This blog post will shortly describe this presentation. It was the first time that Gerolf and I presented together, but despite limited time for preparing it went really well much thanks to Gerolf and an enthusiastic audience.

Gerolf started off the presentation by discussing the term Digital Work Environment that is used by for example Digitaliseringskommissionen, Prevent and Vision. For example Digitaliseringskommisionen defines it as:

 “The work environment in the digital economy”.

There is no scientific definition of the word, and in research other terms are used such as work engagement and healthy work.

Twenty years ago there were numerous different professions that worked with different tools, but working life has changed and today most work is done using a computer or an iPad, or other ICT technology, see image below:

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When looking at the digital work environment there are numerous alarm reports from health care such as Isabella Scandurras “Disturbing or Facilitating“. Most health care professionals use around 25 different computer systems in their work, and these are often not connected or made to work well together even though they spend much of their time working through these systems. Physicians spend around 50% of their time working with the computer, and around 50% doing other things such as meeting patients. There are numerous media articles about the problems with ICT in health care, see the picture of the blog post. The problems are alarming, and health care professionals are as a consequence not always positive to changes related to IT.

One example of digitalisation in health care is medical records online for patients. Most physicians and nurses are very worried of the effects of this system. Mostly they are worried about the effects on the patient, but they are also worried about the effects on their work environment through the following changes:

  • Changes in well established work routines
  • Time pressure
  • Less time for preparation
  • Increased risk of misjudgements

Health care is not the only area where the digital work environment is problematic. Unionen (one of the largest Swedish unions) distribute a yearly or biannual survey to their members to investigate the digital work environment. The sub-titles of their reports called “The digital work environment of white-collar workers” tell us about the results from the survey:

2008: Why doesn’t it get better?

2010: A system error?

2011: Always online – never relaxed

2012: One step forward and two steps back

2014: No lightning ahead

In the seminar we continued with discussing what is known about software development and success factors, and we presented the results from the CHAOS report and research reports that show that one of the most important things when developing good IT for work is user involvement. But I guess that you already knew that 🙂

 

Patient Empowerment Meets Concerns for Patients – a Study of Patient Accessible Electronic Health Records in Sweden

The DOME consortium presented a paper at the conference Medical Informatics Europe (MIE 2016), in conjunction with Health – Exploring Complexity: An Interdisciplinary Systems Approach (HEC 2016), At Munich, Germany this summer.

Both the slides and the short abstract for the presentation is found on Research Gate. 

The paper contrasts the perspectives of physicians and nurses when it comes to putting medical records online for patients to read and discusses how patient empowerment (which is one of the goals of putting medical records online) meets concerns for patients.

The presentation at the conference was made by the very professional Christiane Grünloh and  Hanife Rexhepi, and the paper was written by then and other DOME researchers: Rose-Mhaire Åhlfeldt, Gunilla Myreteg,  Isto Huvila and me.

The paper addresses the  difference in perspective between physicians and patients that we have seen in our studies.

It is a paper well worth reading, and the presentation has excellent slides presenting the difference. Read it! 

 

Digitalisation and the Effect on the Work Environment of Nurses – Our New Research Project

We have started a new research project, DISA, in the area of digitalisation and the effects on the work environment of nurses. The project will investigate the area from a socio-technical and gender perspective, and the project team is multidisciplinary. I will be leading the work together with Minna Salminen Karlsson from the centre for gender studies at Uppsala University. The project is done in collaboration with the county council in Uppsala, and especially the EPJ division, and we have a very ambitious plan for the work. This will be great fun!

In the project we will do studies of the digital work environment of nurses in surgical care, children’s care and in oncology. The project is off to a good start and we have already come far in the work in oncology and surgical care. The work with the children’s care will have a kick off next week when we are meeting the hospital IT manager to discuss the project.

The DISA project is funded by Forte and part of the project will be a part of the DOME consortium.

What is DOME? Some Words about the Background and the Consortium from My Perspective.

I have collaborated with the county council in Uppsala since 2003 as a part of the project course IT in Society. In this course I collaborate with my husband Mats Daniels who does research on learning environments for developing professional competencies related to IT systems development. The course is based on the teaching strategy of Open Ended Group Projects. Through this course we worked on the topic “Medical Records Online for Patients” a couple of three times between 2003 and 2011. The students did thorough research as a part of their course, and they also wrote one of the white papers that the county council sent to Brussels to get funding for the SUSTAINS project.

Around 2012/ 2012 the large EU project named SUSTAINS started and was coordinated by the county council in Uppsala. Mats Daniels and I were contacted by the project managers Benny Eklund and Leif Lyttkens (with whom we collaborated in the IT in Society course) who asked if we wanted to start a research project and do research on the implementation and consequences of putting medical records online in Uppsala county.

The SUSTAINS project had a meeting in Uppsala around new years eve in 2011/2012 and my husband and I set up a brief document describing the major ideas behind a research project and you still find these ideas in DOME today. These idead were presented at the meeting to see if there were other researchers interested:

  • Three work packages:
    • 1) patients & relatives
    • 2) health care professionals
    • 3) systems development and implementation
  • Multidisciplinary research
  • Studies on the effects of the implementation from different perspectives using both qualitative and quantitative research methods.

My main research areas are IT and work, and how we develop and implement IT for work. However, in DOME I have not only done this but also research looking at the implementation from the patient perspective.

After this initial meeting we organised a few start up meetings in Uppsala for researchers that would be interested in this work. We got help from the EU coordinators at the university to find people, and somehow the words spread and we became a group of around ten people very quickly. I had never met most of these researchers, but we had very open and creative discussions.

During the first years the DOME project had funding from VINNOVA, and the last few years it has changed into a research consortium that consists of  researchers with funding from different sources. This fall we have funding from AFA through the EPSA project, Forte through the DISA project as well as strategic research funding through Örebro University and Uppsala University. This spring there will also be some funding from NordForsk through a new centre for gender research, and from Forte through the PACESS project.

The number of active researchers in DOME has varied over the years, but we are around 12-15 people that participate in meetings and do studies on medical records online. We come from six different universities, and we meet using Skype every three weeks and have a conference every semester at one of the universities. The next DOME conference is organised in Skövde in March 2017. DOME has a small group of leaders, and I am the coordinator of the consortium.

DOME is an open consortium and the only criteria for joining us is that you want to do research in the area of medical records online for patients, and that you spend time with us in DOME.  You can come from any area of research, and any university. 🙂