Last week DOME presented a workshop paper called: “Please do not confuse your google search with my medical degree” at NordiCHI 2016. The paper presents a critical incident regarding relatives reading medical records online where a relative reads the medical record online and googled, and received, a cancer diagnosis.
The workshop included a poster presentation, and the fantastic poster by Hanife Rexhepi and Christiane Grünloh is the image of the blog post. During the workshop we worked very actively with writing post-it notes about the different posters, and it was many interesting learning opportunities found. I really enjoyed the workshop, and I was really impressed by the organisational skills of Christiane Grunloh who was keeping everything togehter in a very nice way.
The paper’s abstract is as follows:
The availability of medical devices, health apps, and online resources of health data has led to concerns regarding how to identify the quality and validity of online health information. Concerns about patients’ health information seeking on the Web mainly come from the healthcare professionals, whereas patients often seem to be satisfied with the information they find online since they use it to improve the knowledge base about their health condition. This position paper aims to outline a critical incident that illustrates the patient perspective of searching online information in relation to the eHealth service Journalen where patients and relatives in Sweden can access their electronic health record online. The critical incident is based on a true story; it describes how Steve received his cancer diagnosis, and how his wife Tina googled to find out more about the diagnosis. This case illustrates how accessing your electronic health record and Google search can support information needs and increase the understanding of health data for patients and relatives, although the opposite is argued by many professionals in healthcare. Finally the critical incident is discussed in relation to the concept of eHealth literacy and patient empowerment.
A full text of the paper is found at Research Gate